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Post by e11e on Oct 7, 2016 13:33:51 GMT -5
October is Sensory Awareness month!! I am an SPDEer and I work in special education with a little boy who has spd as well.
Do you or someone you love have a sensory disorder? Share your stories, struggles, symptoms, questions... This is a place for love, support and encouragement.
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Post by e11e on Oct 7, 2016 13:48:40 GMT -5
Define 'set off'.
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Post by Basement Cat on Oct 7, 2016 14:27:00 GMT -5
It would be nice to not automatically react violently to sudden stimuli. A simple brush of skin should not equate to a twitching spasm.
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Post by Deleted on Oct 7, 2016 14:28:38 GMT -5
my anxiety comes with a lot of sensory symptoms
in the midst of a panic attack loud noises literally make me feel like my head is going to explode, and people touching me, well, don't even get me started...
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Post by e11e on Oct 7, 2016 15:01:32 GMT -5
Basement: you have spd or HSP?
Stranger: I completely understand. So you have panic disorder with HSP maybe?
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Post by Deleted on Oct 7, 2016 15:24:43 GMT -5
yeah, basically ugh and maybe ocd too (i'm in the process of diagnosis) which can REALLY overwhelm your senses
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Post by e11e on Oct 7, 2016 16:10:33 GMT -5
yeah, basically ugh and maybe ocd too (i'm in the process of diagnosis) which can REALLY overwhelm your senses I have ocd too. I understand that struggle.
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Post by e11e on Oct 7, 2016 16:11:41 GMT -5
Bleak: sounds more like hsp to me idk though
Spd in particular has a wide range of symptoms, all attacking the eight senses in the human body.
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Post by Deleted on Oct 7, 2016 16:14:42 GMT -5
yeah, basically ugh and maybe ocd too (i'm in the process of diagnosis) which can REALLY overwhelm your senses I have ocd too. I understand that struggle. ugh i'm sorry
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Post by Deleted on Oct 7, 2016 16:30:06 GMT -5
Bleak: sounds more like hsp to me idk though Spd in particular has a wide range of symptoms, all attacking the eight senses in the human body. Eight? I have SPD, too. I've just never heard the eight thing before. What're the other three?
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Post by e11e on Oct 7, 2016 16:50:01 GMT -5
December:
you know the basic five. Those are most commonly taught. Not sure why the others arent.
1. Visual
2. Auditory
3. Olfactory (smell) System
4. Gustatory (taste) System
5. Tactile System
6. Vestibular (sense of head movement in space) System
7. Proprioceptive (sensations from muscles and joints of body) System
Annnnd...last but not least the most recently discussed set of sensations related to internal organs. Most debated of the senses but they seem to have come to a conclusion about it.
8. Interoception
With a diagnosis of spd your OT should have informed you of the eight senses. Especially since spd attacks all of them. Did your OT not properly inform you? :/
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Post by e11e on Oct 7, 2016 16:50:49 GMT -5
I have ocd too. I understand that struggle. ugh i'm sorry It's all good, friend. How did they come to this diagnosis? What do you struggle with?
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Post by Deleted on Oct 7, 2016 17:01:00 GMT -5
It's all good, friend. How did they come to this diagnosis? What do you struggle with? really bad intrusive thoughts yikes yikes
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Post by 🍁Searipple101🍁 on Oct 7, 2016 19:39:03 GMT -5
I have auditory overload as one of my 5 mental disorders. When I hear certain sounds I get all kinds of symptoms: muscle tension, muscles twitching, aggravation(extremely), sometimes I will cry, strong urge to hurt myself, covering my ears so I don't hear anything at all, restlessness, and sensitivity to light(so I have a strong urge to go somewhere much darker, and quieter). Occasionally I have had major breakdowns because of the dog...
What sets me off the most is the family dog howling, but someone chewing with their mouth open, babies crying, and literally any interruption when I'm listening to my music.
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Post by Daisypool on Oct 7, 2016 21:11:17 GMT -5
Alright Sensory Awareness Month, October just keeps getting better! Welp, here goes... Yo, I have Asperger's Syndrome. As someone with Asperger's Syndrome, sensory issues have been a huge problem in my life since I could remember. For example, there are certain foods I can't eat, like lettuce or any other raw vegetable, because of the way the texture feels in my mouth. Ugh just thinking about having to eat them and chew through them is making me recoil in my bed. Another example, I can't stand some types of voices. Like when I hear someone talking or chatting with a voice that bothers my ears it sounds like someone's scraping nails on a chalkboard inside of my ear canals. Whenever I heard it I couldn't function unless I silenced my ears completely. Same thing happens to me when people are eating any kind of chips loudly near me. Last example I'll give, and I think I've gotten over this now, but I used to hate it when I saw people twirl their hair around their fingers or lick their finger to sort through papers. It made me cringe so bad I could of puked. Whenever I saw that I had to do whatever I could to get that person out of my line of sight or I would of crawled out of my skin. As for struggles about my sensory issues, imagine going through all of this and plenty more sensory issues everyday. With time and help and support I've learned to cope with it better, but I still deal with this everyday and I will probably for the rest of my life. While still being a nuisance in my life now, these issues were more than a catastrophic problem for me and my family while I was in elementary and middle school. For a single, specific story, let me tell you about my 5th grade math teacher. She had a voice that bothered my ears, and I couldn't sit through a single class without holding my ears shut as she teached. However, that's if I bothered being in the class. I got in trouble constantly with my teachers, my *bleeeep*bag counselor, the principal, and just the entire school because I would hide in the nurse's bathroom so I didn't have to go to math class. Some days I would be 'brave' I guess and try and show up to class, but everyday I would end up having a sensory breakdown in my head until I asked to leave class so I could go hide in the bathroom until the bell rang. Now, because I barely showed up to math and could never listen to what she was saying my math grades were practically nonexistent. To make things worse she also licked her fingers when she passed out papers. So not only did that make me sick whenever she handed out papers I never touched or took any of the papers she gave to me. That was a great year for me not learning math. I don't really have any questions about anything so I guess that's it. Daisy out.
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Post by 𝕡𝕖𝕡𝕡𝕖𝕣𝕞𝕚𝕟𝕥 on Oct 7, 2016 21:19:32 GMT -5
I have misophonia if that counts... whenever I hear certain people chewing, breathing, sniffling, grunting, or making other mouth noises, I get extremely distressed and angry. I tend to yell at people and break things. I get all tensed up inside, my muscles twitch involuntarily. It's like listening to a nail scratching a chalkboard — nonstop, without break. Heck, I'm even triggered by my brother's voice, so I can't be in the same room as him for long. It's horrible.
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Post by Basement Cat on Oct 7, 2016 21:21:34 GMT -5
Basement: you have spd or HSP? Stranger: I completely understand. So you have panic disorder with HSP maybe? SPD
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Post by ✲ριкαƒυєу✲ on Oct 7, 2016 21:39:12 GMT -5
I've had severe anxiety my whole life, and then PTSD for the past 18 years (I'm 23). So certain sounds will set me off--particularly very loud sudden sounds. I wouldn't say I have a sensory disorder, as I think my sensitivity to sounds comes from my anxiety and PTSD. Though, I could be wrong. I really hate the screeching sounds or loud banging of any sort. It gives me a mixture of panic and very sharp anger--like, I want to punch someone anger.
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☂ℛɪᴠᴇʀ Sᴘɪʀɪᴛ
so i have a habit of disappearing for a while, randomly - i'll (probably) be back soon-ish
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Post by ☂ℛɪᴠᴇʀ Sᴘɪʀɪᴛ on Oct 7, 2016 22:26:39 GMT -5
I have misophonia if that counts... whenever I hear certain people chewing, breathing, sniffling, grunting, or making other mouth noises, I get extremely distressed and angry. I tend to yell at people and break things. I get all tensed up inside, my muscles twitch involuntarily. It's like listening to a nail scratching a chalkboard — nonstop, without break. Heck, I'm even triggered by my brother's voice, so I can't be in the same room as him for long. It's horrible. I have misophonia too!!!
Sorry if that came off as kind of eager, but it's nice to meet someone who knows what the condition even is, let alone has it themselves.
But yeah, auditory stimuli has definitely been... an unpleasant presence in my life for a few years now. As of now, yawning, sighing, basically anything related to breathing makes me want to scream and have violent thoughts - I've never acted on them, thankfully, but I've been heading down a slippery slope in terms of not openly reacting to them these days (glaring, jerking noticeably, turning around to look at people when my patience is thin). Hopefully my new medication will help a bit? It's helped with the anxiety in the past, though the effect has kind of plateaued. I suppose we'll see. In any case, my misophonia's caused problems for me in both school and family relations, though my family is starting to grow a more understanding, which is really a big relief <3
My OCD also acts up sometimes when it comes to certain touch or sound, if that counts.
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Post by ℜust ℜed ℜose on Oct 7, 2016 23:47:01 GMT -5
I have misophonia if that counts... whenever I hear certain people chewing, breathing, sniffling, grunting, or making other mouth noises, I get extremely distressed and angry. I tend to yell at people and break things. I get all tensed up inside, my muscles twitch involuntarily. It's like listening to a nail scratching a chalkboard — nonstop, without break. Heck, I'm even triggered by my brother's voice, so I can't be in the same room as him for long. It's horrible. I have misophonia too!!!
Sorry if that came off as kind of eager, but it's nice to meet someone who knows what the condition even is, let alone has it themselves.
But yeah, auditory stimuli has definitely been... an unpleasant presence in my life for a few years now. As of now, yawning, sighing, basically anything related to breathing makes me want to scream and have violent thoughts - I've never acted on them, thankfully, but I've been heading down a slippery slope in terms of not openly reacting to them these days (glaring, jerking noticeably, turning around to look at people when my patience is thin). Hopefully my new medication will help a bit? It's helped with the anxiety in the past, though the effect has kind of plateaued. I suppose we'll see. In any case, my misophonia's caused problems for me in both school and family relations, though my family is starting to grow a more understanding, which is really a big relief <3
My OCD also acts up sometimes when it comes to certain touch or sound, if that counts.I may sound like quite the downer for saying this (and for that I'm sorry) but I totally understand how this feels. I have this something awful, for pretty much any sound at all, really. It's not just loud mouth noises, but noises in general (breathing, rustling, footsteps, sniffling, buzzing, running water, etc.) I usually sit down in my closet with earphones just so I don't have to hear that nonsense. I might be a little extreme, but it's nice to finally get some quiet after all that nonsense all day. I have ADHD (and I do take medication for it) but I cannot for the life of me concentrate if there's any sound. I used to be so much better about this now but it's gotten so much worse.
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Post by e11e on Oct 9, 2016 9:58:20 GMT -5
Wow it's so nice to hear from all of you! I'm so sorry you all have these struggles but you are all strong and able to succeed despite what we all struggle with. Sorry I wasn't able to be more active this weekens. I had a wedding to go to. Oh my is a wedding ever the worst thing for spd. >.>
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Post by e11e on Oct 10, 2016 12:15:05 GMT -5
🍁Searipple101🍁 that sounds very similar to me... have you any coping mechs?
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Post by e11e on Oct 10, 2016 12:17:41 GMT -5
DaisypoolOh man I completely understand. If you're close to my age that was a time period when spd wasn't really recognized or heard of hence maybe the ignorance (or just jerkiness) of your school staff. I'm a lifelong sufferer late diagnosed. Are you the same?
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Post by e11e on Oct 10, 2016 12:18:16 GMT -5
𝕡𝕖𝕡𝕡𝕖𝕣𝕞𝕚𝕟𝕥 People BREATHING I MEAN WHY DOES IT HAVE TO BE SO FREAKING AUDIBLE
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Post by e11e on Oct 10, 2016 12:18:49 GMT -5
Basement Cat Were you a late diagnosis too?
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Post by e11e on Oct 10, 2016 12:19:21 GMT -5
✲ριкαƒυєу✲ I'm sorry. What caused the ptsd if I may ask?
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Post by e11e on Oct 10, 2016 12:21:11 GMT -5
☂ℛɪᴠᴇʀ Sᴘɪʀɪᴛthe violent unwelcome thoughts could definitely also be ocd. Ocd is riddled with uninvited horrible thoughts that are looping in your head upon certain triggers. Paired with your auditory threshold it could intensify for sure.
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Post by e11e on Oct 10, 2016 12:21:57 GMT -5
ℜust ℜed ℜose it's odd but symptoms seem to worsen with age. I'm not sure why:/
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