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Post by ƤαƖƖαѕ ✧ on Dec 8, 2018 17:08:35 GMT -5
Hi there!
My name is semper, but you guys can call me whatever you like. I was diagnosed with Turners Syndrome at age 10. In younger people, Turners Syndrome can have behaviours which manifest in a similar way to ADHD, and then autism as the child grows into a teenager/young adult.
I’m seventeen and have long grown out of the ADHD-esque phase, but I am still trying to figure out my autism-esque phase.
I clearly have sensory issues, particularity surrounding sound and touch. My sound issues particularly became a problem when I got hearing aids not too long ago. I’ve never been able to cope with sound well, and hearing aids didn’t exactly make that problem easier. It did, however, get me to stop shouting at people without realising.
Anyway, I digress. I don’t think a diagnosis is necessary because I will not be exhibiting all of the behaviours associated with autism. I do, however, stim a lot. When I was younger I used to chew a lot, including my hair and my nails. I still chew my nails, but a lot less. I rock and pace a lot too. I do feel that my stims are very obvious but I’m not sure what I can do about that.
Anyway, I’m basically just seeking any advice you guys can give me about figuring out my autistic behaviours and coming to terms with a new phase in my life. I could really use any advice you might give to someone newly diagnosed with autism. Thank you!
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Post by dreamgurl42 on Dec 11, 2018 22:45:44 GMT -5
Hi ƤαƖƖαѕ ✧! I'm a fellow autistic girl myself and your post just called out to me. It just took me a little bit to reply with because I'm dealing with some personal stuff that involves the policeIn my case I wasn't diagnosed until I was fifth teen years old. My kindergarten teacher pointed out I had some behaviors that might be considered autistic and she suggested to my mom that I should be checked in. My mom refused because I was already diagnosed with other stuff and according to her logic it didn't make sense how I can be diagnosed with other mental disabilities ¯\_(ツ)_/¯ I have similar repetitive movement, though I can't seem to sit still. As for chewing, I used to bite my nails until I got braces. That seemed to fix that habit property. To this day I still chew on straws and I play with my hair instead of chewing on it these days. I don't have sensory issues like you do, but blurring lights can be annoying for me. The best remedy that I do with that is I remove myself from the area. Hell, when I'm excited and passionate about something I lose my sense of volume and just talk out loud. Considering that autism itself is a spectrum that has a large variety of high and low functioning, what each person's experience is, and what's included into their diagnoses. It seems there's a difference of each person. As a person that stays in touch of national and UK research in autism behaviors, as well as I might be able to conduct my own at the university, there's actually a lack of research on this aspect, unfortunately. Although this is not scientifically tested, there's a few videos on YouTube that talk about these different quirky traits and not everyone is going to be similar. Here's the video; which I gotta warn you sounds robotic and can be a little bit annoying. If that's the case I'd suggest turning the noise down and reading the list out: About the diagnosis it's highly recommended you keep you diagnosis and records of your medical history especially going into adulthood. If you want financial help, medical insurance, and/or scholarships to help you (the last one being if you want to attend college) it'll be best to turn those records of those copies as proof that you do have a disability. There is a LOT of governmental programs that can benefit you. Rather you want to be independent and/or achieve getting a job. Some programs will turn you away for whatever reason, but you gotta really learn to be persistent and become your own advocate. Be mindful that you are just as valuable and hardworking as everyone else coming into adulthood.
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Post by ƤαƖƖαѕ ✧ on Dec 12, 2018 2:07:00 GMT -5
Wow, that is a very comprehensive response, and so incredibly helpful! Thank you! <3)
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Post by twilightfire on Dec 12, 2018 12:52:35 GMT -5
I've never heard of Turner's Syndrome being described in the same category with autism. The disorder is known to have developmental and learning issues, but it is something many people can work through with extra help. I knew a girl with Turner's who was incredibly bright and honestly no one could tell anything was wrong with her other than the fact she was super short, so most assumed she had a mild case of dwarfism. Some people go through this thing that's kinda like a labelling effect (not just for this disorder but many others) where they get diagnosed, are told the symptoms, then subconsciously begin to act the way they think they are supposed to be acting based on what the doctors said. Try to keep in mind it's possible you aren't going to experience any sort of symptoms outside of what you already have.
I may not have autism or Turner's, but genetic disorders are fascinating so I've read a great deal in to them, and I'm a psychology major so I've learned tons about the autism spectrum
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Post by ƤαƖƖαѕ ✧ on Dec 12, 2018 13:40:37 GMT -5
That’s certainly very interesting, but I wasn’t diagnosed with Turner’s until I was ten, by which point I had already been through the ADHD-esque phase and was going into the autism-esque phase. I think I am not suffering a labelling effect, but it is certainly an interesting idea. Turners can be very different for many different people, and it can certainly manifest in terms of learning difficulties. That’s not a problem I really have, with me it has definitely always been sensory issues. As someone who knows a lot about autism, do you have any tips for me? I really appreciate your detailed and educational response - it certainly inspired some thought )
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Post by Deleted on Dec 12, 2018 13:49:26 GMT -5
hey dreamgurl42 , is it okay if i pm you? i don't want to derail this thread, but you seem to knowledgeable about what it's like to be an autistic woman (as well as being someone who is interested in/has studied it) and i've had a lot of questions for a while (that my parents won't take seriously).
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Post by tiger beetle on Dec 12, 2018 14:41:09 GMT -5
I’m bad with general advice, but I’m around if you ever need to talk.
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Post by dreamgurl42 on Dec 12, 2018 19:52:15 GMT -5
I've never heard of Turner's Syndrome being described in the same category with autism. The disorder is known to have developmental and learning issues, but it is something many people can work through with extra help. I knew a girl with Turner's who was incredibly bright and honestly no one could tell anything was wrong with her other than the fact she was super short, so most assumed she had a mild case of dwarfism. Some people go through this thing that's kinda like a labelling effect (not just for this disorder but many others) where they get diagnosed, are told the symptoms, then subconsciously begin to act the way they think they are supposed to be acting based on what the doctors said. Try to keep in mind it's possible you aren't going to experience any sort of symptoms outside of what you already have. I may not have autism or Turner's, but genetic disorders are fascinating so I've read a great deal in to them, and I'm a psychology major so I've learned tons about the autism spectrum It's going to sound dumb, but I never considered people would act out their diagnosis once a doctor says it is. That could be somewhat problematic since people can be misdiagnosed. Hell, my sister was diagnosed with Arnold Chiari for ten years until she was tested again and it was found negative. She still had Cereal Palsy and arthritis, though.
My some of my psychology classes always talked about the dangers of people self-diagnosing themselves with the use of Google and acting out those diagnoses.
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Post by dreamgurl42 on Dec 12, 2018 19:57:05 GMT -5
hey dreamgurl42 , is it okay if i pm you? i don't want to derail this thread, but you seem to knowledgeable about what it's like to be an autistic woman (as well as being someone who is interested in/has studied it) and i've had a lot of questions for a while (that my parents won't take seriously). Go 'head and slide into my DM's my fiance is not home.
I'm joking about the first part. I swear my jokes will send me to hell one day. Yes! No need to ask me if you can PM me and I do apologize for the delay in getting back in this thread. My internet connection is still bad.
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Post by dreamgurl42 on Dec 12, 2018 19:57:57 GMT -5
I’m bad with general advice, but I’m around if you ever need to talk. Dude that's very generous of you.
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Post by twilightfire on Dec 12, 2018 21:22:54 GMT -5
That’s certainly very interesting, but I wasn’t diagnosed with Turner’s until I was ten, by which point I had already been through the ADHD-esque phase and was going into the autism-esque phase. I think I am not suffering a labelling effect, but it is certainly an interesting idea. Turners can be very different for many different people, and it can certainly manifest in terms of learning difficulties. That’s not a problem I really have, with me it has definitely always been sensory issues. As someone who knows a lot about autism, do you have any tips for me? I really appreciate your detailed and educational response - it certainly inspired some thought ) It's very important for you to become aware of you symptoms and things that set you off. If you find you have more of the behavior issues side, then learn what sets you off so you can get a better control over it. Your mind is a strong thing once you realize it is makes you act a certain way, you can take steps to calm yourself
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Post by Deleted on Dec 14, 2018 0:26:52 GMT -5
I got diagnosed with autism at a young age (around a year or two old), and I was diagnosed with Asperger's at around 10 or 11 years old.
I don't know what to say on any subject on autism, but one of the most difficult things I've experienced is having an entirely new routine from what I've been used to. If you ever had any changes in your routine, I think the most you can do is talk with someone about how to adapt.
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